Vascular ehlers danlos syndrome

Vascular Ehlers-Danlos Syndrome is a genetic connective tissue disorder affecting blood vessels, arteries, and organs. I was diagnosed with it in 2016. #vEDS #vasculareds #eds #ehlersdanlos | www.therescuedletters.com

EDS resources, printables, freebies, awareness products, etc.

Vascular EDS is a life threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at risk of sudden arterial or organ rupture. Vascular EDS is a genetic condition caused by an alteration, also known as a mutation, in a gene called COL3A1.

Using stem cells, scientists created a model of the blood-brain barrier in a chip the size of an AA battery, for use in Parkinson's research, a study shows.

Signs and Symptoms

By Ross A. Hauser, MD & Hilary J. Phillips ABSTRACT Joint hypermobility syndrome (JHS) and Ehlers-Danlos Syndrome (EDS) are both heritable disorders of connective tissue (HDCT) characterized by joint laxity and hypermobility. The conditions are both genetic disorders of collagen synthesis, where the adverse effects of tissue laxity and fragility can give rise to clinical consequences that resonate more »

Have you experienced these side effects?

"I didn't know it wasn't normal. As a child/teenager I just assumed everyone got this."

How to support someone with #EDS Ehlers-Danlos syndromes

“Ehlers Danlos Syndrome” infographic #EhlersDanlosSyndrome